As part of the IWGGD, scientific working groups have been working together to create patient’s centered guidelines for Gaucher disease.
In general, the Gaucher disease-specific treatment of women with Gaucher disease needs to follow the recommendations stated in the treatment and monitoring working group (WG).
The aim of this guideline is to provide evidence-based recommendations to best meet patients' needs, ensuring timely and accurate diagnosis for GD patients.
It is now acknowledged that patients' input in health outcome assessment is vital to understanding the impact of diseases and interventions.
In general, the Gaucher-disease specific treatment of children (< 18 years) with Gaucher disease needs to follow the recommendations stated in the treatment and monitoring working group (WG).
Recently, patients living with Gaucher disease, their caregivers and families, and patient organisations, have increasing concerns about the circumstances of switching medicines used to treat this rare condition.
